The First two years
As I am going now into a more elaborate and very long treatment (see below), and it may harder to answer individual e-mail queries about my health, we decided to put updates on the development of my illness in this blog form, which mostly Edna will write. Still, feel free to send us e-mails – it just may just be that we will take longer to respond. Let me start with a short summary of my illness in the past 2+ years since discovery, to put everyone on the same page. I was diagnosed with Marginal Zone Lymphoma (MZL) in July 2017, following severe anemia. MZL is an indolent, non-Hodgkin’s lymphoma, which sometimes is not even treated, when confined, as in my case, to the bone marrow. However, this cancer and other processes in my bone marrow had a major side effect of arresting my blood generation (first red blood cells, and later all bloodlines). During these two years I had four different treatments (one biological, one immune therapy, and two different chemo therapies), ...